***This post is not directed at any one person as the p.o.v. might imply, but rather sums up my feelings about so many conversations, spoken and not, imagined and not, that happen between people with chronic incurable illness and their loved ones.*** It’s hard to accept that an illness will be chronic, ongoing, and that only […]
For the last two weeks I have spent more time at my new home in Peterborough than I have in Toronto, and I can already feel some of the tension melting out of my shoulder blades. The migraines are still frequent, but being in pain poolside, in a quiet, scent-free, tree-surrounded oasis is a best […]
When the American Migraine Foundation and American Headache Society launched their “Migraine Moment” film contest, I thought, hey I’m artsy and I’ve got a bucketload to say about living with migraine…I should make a video. I wanted to convey the isolation and endless optimism that migraine demands, so I wrote a song and dreamed up […]
A couple of years back, I conducted an online survey for people with migraine and their caretakers/partners about managing relationships with migraine in the picture. I learned two things from this survey. The first is that I actually have no idea how to compile and meaningfully interpret the data I collected (I’ll work on that […]
Hi Brain Stormers, My online community is the best. When you’re stuck at home feeling alone and miserable, it’s nothing short of essential to connect with other folks who are dealing with the same crap. However, chatting with spoonies in person has been even more helpful. Chatting with people who live with frequent/severe migraine has […]
Dear beloved Brain Storm readers, Things have been rather quiet on the blog. I’ve been using up all my writing energy to GET PAID, which isn’t so bad. If you’d like to check out some of my recent stuff about living with migraine, this is where to look (I’m particularly fond of the most recent […]
The following is a guest post by the creator of the blog Miss•Treated, Katherine Ernst. Katherine graduated with honors from the University of California, San Diego with a Bachelor of Arts in Psychology. She went on to earn her Juris Doctor from Loyola University, New Orleans, graduating Magna Cum Laude in 2007. After giving […]
