A couple of years back, I conducted an online survey for people with migraine and their caretakers/partners about managing relationships with migraine in the picture. I learned two things from this survey. The first is that I actually have no idea how to compile and meaningfully interpret the data I collected (I’ll work on that […]
Hi Brain Stormers, My online community is the best. When you’re stuck at home feeling alone and miserable, it’s nothing short of essential to connect with other folks who are dealing with the same crap. However, chatting with spoonies in person has been even more helpful. Chatting with people who live with frequent/severe migraine has […]
Dear beloved Brain Storm readers, Things have been rather quiet on the blog. I’ve been using up all my writing energy to GET PAID, which isn’t so bad. If you’d like to check out some of my recent stuff about living with migraine, this is where to look (I’m particularly fond of the most recent […]
The following is a guest post by the creator of the blog Miss•Treated, Katherine Ernst. Katherine graduated with honors from the University of California, San Diego with a Bachelor of Arts in Psychology. She went on to earn her Juris Doctor from Loyola University, New Orleans, graduating Magna Cum Laude in 2007. After giving […]
Pain is isolating Out of necessity, we cling to the comfort of our own food Our own home, our own bed To cope, protect, avoid, heal, rest, cry To not spend precious energy on faking wellness Our pain also necessitates support As much as we can get While we let go of relationships We no […]
[January | Weaving therapies together like a wreath by Jamie Ashforth] Where should we go when professionals lead us astray? When specialists are overbooked and underfunded? When drugs prescribed to help do harm instead? We will not settle We will seek talented, compassionate healers We will demand better care and better research We will learn […]
Now that I’ve got the good news out of the way re: making a living as a part-time teacher, part-time freelance artist/writer, it’s time for the bad news: Managing a freelancing schedule that accommodates for the demands of chronic migraine is HARD. Holy Hannah. Props to all of you #spoonies out there who are making it […]
